#SalvagedWithLove: Erin’s mission to change the world and support hospice care
Erin Hayhow from Whitstable is a fashion designer on a mission to change the world. Using only waste materials, which she dyes and paints with her own designs, she is on her way to building a sustainable future for the fashion industry. Her slogan is #SalvagedWithLove.
Erin’s mum, Sarah, was cared for at the Canterbury hospice in 2014. To give back for the support her family received, she plans to donate to Pilgrims Hospices as her brand grows and hopes to run up-cycling workshops with Pilgrims shops in the near future.
Sarah and Erin
After graduating with a first class BA in Fine Art from Solent University, Erin moved to Berlin to pursue a career as an artist but returned home when her mum was diagnosed with pancreatic cancer.
She said: “I was her carer for two years; during that time, creativity was so important to me because it was a way of understanding what was happening.
“My mum was the most fashionable person I know; my love for fashion came from her, she always dressed me in the coolest clothes. Putting my legs through plastic carrier-bags from our weekly shopping trips, pulling up the handles like straps, I’d made my first pair of dungarees. I wasn’t allowed to wear high heels, but I improvised by painting papier-mache tissue boxes and toilet roll tubes. I put them on with my new dungarees and strutted down my garden like a catwalk.
“During her illness, Mum would wear amazing garments every day and it would give her the ability to conquer the world. It became her armour, and it’s the same to me.”
Erin doing her Firewalk
Sarah was initially given a three-month prognosis but lived with cancer for 18 months. She didn’t feel she needed hospice support until the end of her life. Erin continued: “Mum’s mindset changed once Pilgrims was involved. I remember the hospice so strongly, there was a big community of people ready to support us. They were incredible with her. This was my first experience of hospice care and I want to raise awareness so that others know they can access it, too.”
Erin went on to complete a Fashion Design MA at UCA Rochester, achieving a distinction. She finished her five-piece collection Flowers Grow in Dustbins, made from 100% recycled materials, in 2019; these garments are available to purchase on her website. She also sells a range of more affordable pieces via Instagram @eirinnhayhow. To give back for the support her family received, Erin will donate 5% of the money made from sales to Pilgrims. Erin also took part in the charity’s sponsored Firewalk event in Canterbury on 13 March 2020.
I remember the hospice so strongly, there was a big community of people ready to support us. They were incredible with her. This was my first experience of hospice care and I want to raise awareness so that others know they can access it, too.
Erin
Erin plans to continue donating to Pilgrims as her brand grows and hopes to run up-cycling workshops with its shops in the near future, in exchange for materials that they can’t sell. Tim Stewart, Retail Business Development Manager at Pilgrims, said: “I met Erin in 2019 and she told me her story, explaining she’d been buying bits from our shops and using them as a basis for her new pieces. It was obvious to me that she was talented, and that she wanted to give something back to Pilgrims. So I offered her some materials that we hadn’t been able to sell, along with a couple of rails, and a mannequin to help her starting up. She was very grateful for the support and has offered to run design and screen-printing classes at one of our shops. We look forward to working with Erin in the future.”
Erin added: “After my mum passed away, I moved back to Berlin and began screen-printing on t-shirts and garments DIY-style. As my sewing skills improved, I used fabrics and materials that were either found on the street or donated to charity shops – from there I started to form my own collections. In 2017, I sold my first collection at Studio183 in Bikini Berlin. That summer, I moved back to Whitstable and opened a pop-up store in an old shipping container in a furniture yard in Margate. I became part of a waste-free fashion collective made up of four members; we all make garments from waste materials. We’ve had three shows at the Turner Contemporary and one at Soho House Berlin.
“The fashion industry is the world’s second biggest contributor to global warming, with 350,000 tonnes (that’s around £140 million worth) of used but still wearable clothing going to landfill in the UK every year. My brand says no to fast fashion. It is my intention to help solve our global waste crisis by creating imaginative solutions for unwanted materials.
“We need to find sustainable solutions to our waste problems. We need to re-think the fast fashion system. Fashion should be positive, it should be inclusive, it should be empowering. As designers of the future, it is our duty to be sustainable.”
Each year Pilgrims Hospices give care and comfort to over 2,400 people in east Kent who are coming to terms with an illness that sadly cannot be cured. The charity support patients to live life as well as possible until the very end, free from pain and distress.
22nd December 2020
Festive occupational therapy at Pilgrims
Occupational therapy plays its part within the diverse range of services offered by Pilgrims Hospices. Helping people to live well in every moment is important to everyone at the hospices. The OT team has been helping patients on the wards to get creative and make some beautiful festive cards and angel decorations.
Della Green, Pilgrims Occupational Therapy Assistant explained: “My colleague Kristy Wells, OT Assistant at our Thanet Hospice, had the lovely idea of making up Christmas craft packs for patients to do whilst on our In-patient Units (IPU). We are always looking at ways to expand the range of therapeutic activities provided on our IPU’s across our sites in order to offer our patients the opportunity to engage in meaningful activities.”
We are able to adapt the activities in order to meet the various needs of our patients.
Della – Pilgrims
Della Green – Pilgrims Hospices, Occupational Therapy Assistant.
The team looked through the art supplies in the Wellbeing and OT departments and designed some Christmas card and angel decoration packs. They compiled some coloured instructions for the patients (and staff) on how to assemble the items. The kits were then put together in individually sealed plastic pockets in order to meet infection control guidelines. The packs can be completed in bed or at a table, are not energy intensive and are suitable for ladies or gentlemen of all ages. We use easily accessible resources enabling patients to continue their crafting ideas if returning home.
Della continued: “We are able to adapt the activities in order to meet the various needs of our patients. The lovely things about the selection of packs are that they are graded so anyone can have a go, regardless of age or diagnosis. We planned the craft activities to enable our patients to have the opportunity to bring meaning and fun with the added bonus of a beautiful end product to give to family or friends. We can all learn new skills and enjoy new experiences whatever our age or ability and some patients have pleasantly surprised themselves, with many not having partaken in art or craft previously.
“It has been shown that taking part in arts and crafts helps aid relaxation and therefore assists in relieving symptoms such as anxiety and pain, which is particularly important with our patients.
“The feedback from patients has been very positive and whilst doing the activities patients have really enjoyed reminiscing, story-telling about family traditions, chatting about family and childhood memories. It has also encouraged conversation between patients and taking part in the craft activities is often a great icebreaker. Patients who may have been reluctant to have a go at making something have enjoyed their sessions so much, that they have asked to make another card or angel.”
Kristy, Pilgrims OT Assistant added: “When I used the first Christmas card making kit with a patient on our IPU, she thoroughly enjoyed the craft session as she was very into crafts at home. Not only was she pleased with the finished card, but she said that she would be sending it on to an elderly friend who lives in a nursing home and who also enjoys crafting. So two people have had pleasure from the experience.
“As patients are enjoying our Christmas kits so much, we are hoping to carry on the activities at Easter and other times during the year. Making the Christmas cards and decorations for family and friends is such a meaningful activity, especially at this time of year.”
Each year Pilgrims Hospices give care and comfort to over 2,500 people in east Kent who are coming to terms with an illness that sadly cannot be cured. The charity support patients to live life as well as possible until the very end, free from pain and distress.
8th July 2020
Louise walks on the one-year anniversary of her mum’s death
On the one-year anniversary of her mum’s death at Pilgrims Hospices, Ashford, Louise will join many others as they virtually hike the Isle of Wight Coastal Path.
Louise Brooks, from Tenterden, has signed up to the Isle of Wight Coastal Path Virtual Hike to raise much-needed funds for Pilgrims Hospices in memory of her mum, Barbara Huckstep.
Here, Louise tells us about her mum, Barbara, and why she is forever grateful for the care, support and comfort that Pilgrims Hospices gave her family.
“Mum was first diagnosed with Breast Cancer in 1999, it was treated with chemotherapy and she was given the clear. In 2016 however we received the news that she had secondary Breast Cancer and it had moved to her lymph nodes and bones. Once again, mum fought it hard with chemotherapy and was determined for life to stay normal. By 2019, this simply wasn’t possible anymore.
Together, as a family, we celebrated mum’s 70th birthday in March 2019. She was breathless, tired and weak. By June mum had deteriorated quickly, and we learnt that the cancer had spread to her brain and liver. This is when we learnt about Pilgrims Hospices.
Barbara and her husband on her 70th Birthday
After a short-stay in hospital, mum was welcomed into Pilgrims Hospices, Ashford, with open arms and thank goodness she was. As soon as I walked in I relaxed. I knew she wasn’t going to be coming home, but I knew she was going to be made comfortable and be looked after.
Shortly after we got mum settled in her room, Rodney, the Ashford PAT dog, was visiting the patients on the ward. He entered mum’s room and instantly joined her on her bed; nestling into her. Rodney’s owner spoke of how rare it was for him to do this to patients. Mum adored dogs and she was overjoyed to be able to stroke him. That was the first time in days that I’d seen mum smile and be aware of her surroundings, it’s something that will stay with me forever.
Dad, my sister and I were introduced to the nursing team, and they carefully took us through mum’s care plan. Before mum’s stay at Pilgrims Hospices I wasn’t aware of the holistic approach that the hospice takes to patient care, and the family. In her final days the hospice made it possible for us to be together as a family, one last time. I cannot even begin to thank them all enough.
Mum had a peaceful 6 days in the hospice. We were allowed to be with her 24/7, until her fight ended on 8th July 2019.
The one-year anniversary of mum’s death was approaching and it seemed like the perfect time to do something positive in mum’s memory. Straight away I knew I wanted to raise money for Pilgrims Hospices so that they can be there for the next family, just like they were for mine. I saw the Isle of Wight Coastal Path Virtual Hike and thought perfect; within an hour I was out walking my first 3 miles. The generosity of friends and family has been overwhelming, it’s spurred me on to complete the 70 mile virtual hike and this is just the beginning of my fundraising journey for Pilgrims Hospices.”
Louise has set up a JustGiving page for her Isle of Wight Coastal Path to raise vital funds for Pilgrims Hospices. If you’d like to support Louise on her virtual hike you can here:
There’s still time to sign up to the Isle of Wight Coastal Path Virtual Hike and challenge yourself this July for local hospice care in east Kent: Sign up here.
Each year Pilgrims Hospices give care and comfort to over 2,500 people in east Kent who are coming to terms with an illness that sadly cannot be cured. The charity support patients to live life as well as possible until the very end, free from pain and distress.
12th May 2020
International Nurses Day: Being a Pilgrims nurse
Pilgrims Hospices is recognising nurses and key workers on International Nurses Day. To celebrate nurses from across the globe on this day Pilgrims Hospices would like to share a huge thank you to all those who are working to care for people across the world.
Pilgrims nurses have cared for 1000s of patients, their families and friends in their homes and on the hospice wards for more than 35 years. This year the east Kent community is sharing special messages of thanks with the local charity as lockdown keeps us all social distancing.
Kate White, Pilgrims Senior Nurse Manager explained: “We’ve received such heart-warming messages from the local community, it is really appreciated by everyone at Pilgrims, and of course it’s lovely to be recognised on our special day.
“Our nurses and key workers are working tirelessly to ensure patients receive the highest quality care during these difficult times. We understand how important contact is for everyone and we are doing our very best to help patients to feel part of our Pilgrims family whilst their families are caring from a distance.”
Ryan Mowat and Michelle Bennett, Palliative Specialist Nurses at Pilgrims Hospice Ashford
Sarah Brown, Pilgrims Specialist Palliative Care Community Team Lead added:
“We have the privilege to support people and their loved ones at such a key time in their lives. The loss of someone you care for deeply or for whom you share special connections can only be described as the most difficult and heart-rendering time for most people.”
Angela Padgham
Palliative Specialist Nurse
“I’m continuing to do my part and helping to support the palliative care patients in the community who we can’t visit.”
Charlotte Davies
Palliative Specialist Nurse Community Team Leader
“I have wanted to be a palliative nurse since I was 10 years old – that’s a long time! Nurses are born, not made and that is especially true of hospice nurses. To me, hospice nursing is more than just being a face or a name on a staff board. It’s the trust that people put in us to ensure they have the care and support both on the inpatient ward and in the community. It’s the understanding that we are with them every step of the way. Like Maya Angleou said: ‘People will forget your name, they will forget what you said, they will forget what you did. But they will NEVER forget how you made them feel.’ I’m proud to be a hospice nurse!”
Palliative Specialist Nurses
Pilgrims Hospice Ashford
“We are all so proud to be nurses. It is a privilege and an honour to be able to care for someone, especially to provide care and comfort to those at the end of their life. We are proud of our jobs and of the place that we work. There is no profession like it!”
Alison Wiltshire
Palliative Specialist Nurse and Community Nursing Team Leader
“I am very proud of what we do and the opportunities we have to make a real difference to someone at the end of their life and I can’t really imagine myself doing anything else.”
Rachel Kendall-Jones, Lorna Moss and Becky Baldwin, Palliative Specialist Nurses
Kelly Navarro, Palliative Specialist Nurse, Community Team
Kate continued: “Our Pilgrims community extends past the nursing and on to the greater needs of those in our care and their families. This is why we are encouraging people to think about what needs to be in place in order that their wishes can be met and carried out in a timely and meaningful manner.
“By engaging with people living with long term conditions at an earlier stage of their illnesses, we believe this will enable people to remain in control and maintain their dignity, focusing on good quality of life, especially when someone’s condition deteriorates. We’re helping our teams to manage through the COVID-19 crisis by ensuring they have sufficient wellbeing resources in place and opportunities to share their concerns for those around them with Pilgrims’ internal support network of carers and advisers.
My thoughts are; in six months time; we will be able to touch and communicate with our patients without the barrier of a mask. Patients dying in the hospice will have their loved ones with them as they take their last breath. Nurses will be able to focus on what is most important to patients, without fear and restrictions. People with cancers will seek help and support, not being fearful of COVID-19 and ‘putting up’ with symptoms. Nurses will have developed enhanced skills protecting patients, the public, colleagues and themselves, keeping safe.
Debbie Boots, Advanced Nurse Practitioner
“Our support teams in catering, counselling, domestic services and so many others are contributing vital assistance for our Pilgrims nurses; we are delighted to be sharing our special day with such special colleagues.”
Pilgrims Hospices is Still Here, Still Caring. The hard work and dedication do not go unnoticed; now, more than ever, we appreciate you! You can help the Pilgrims nurses to continue with their specialist end-of-life care by making a donation to the Still Here, Still Caring campaign.
Thank you, your hard work does not go unnoticed.
Happy International Nurses Day!
Each year Pilgrims Hospices give care and comfort to over 2,400 people in east Kent who are coming to terms with an illness that sadly cannot be cured. The charity support patients to live life as well as possible until the very end, free from pain and distress.
7th August 2018
Patient treats Pilgrims’ nurses to ice lollies
Thoughtful Pilgrims patient, Steve Price, treated the care team at Pilgrims Hospice Thanet to ice lollies as temperatures in Margate rocketed into the high 20 degrees.
Computer programmer Steve, who took early retirement in 2004, has been spending some time at the Margate hospice to help manage his pain before returning to his home in Deal. Steve was diagnosed with life-limiting pancreatic cancer; the Pilgrims community team has been supporting him and will continue to visit his home when he returns there soon.
Steve said: “I thought it would be nice to offer the Pilgrims staff a cooling treat during this prolonged period of scorching temperatures. My daughter, Kate, did some ice lolly shopping before bringing my granddaughter Lucy to visit me at the Thanet hospice.
I was so pleased to have been able to offer some cooling treats to the Pilgrims team. I just thought everyone has been so kind and looked after me, I wanted to do something nice for them. The staff have been brilliant.
Steve
“Pilgrims chef George found freezer space for the lollies and I was so pleased to have been able to offer some cooling treats to the Pilgrims team. I just thought everyone has been so kind and looked after me, I wanted to do something nice for them. The staff have been brilliant; nothing is too much trouble, even though the heat has been quite exhausting for everyone.”
Pilgrims’ care team Maxine Lewis, Sharon Hill, Louise Jarman and Lou Boulton
Georgina Braithwaite, Head Chef at Pilgrims Hospice Thanet, said: “It was a lovely surprise and a very kind gesture made by Steve. The mini heat wave has been quite a challenge over the past weeks so the lollies were really appreciated.
“My catering team has been working continuously to keep our patients, their families and our staff refreshed and hydrated. Our juicer machine has been working full time to supply cold fresh juice to patients whose appetites are being affected by some of the hottest weather we’ve experienced in a long time.”
It was a lovely surprise and a very kind gesture made by Steve. The mini heat wave has been quite a challenge over the past weeks so the lollies were really appreciated.
Georgina Braithwaite, Head Chef at Pilgrims Hospices
Steve’s daughter Kate said: “Everyone has been so lovely to my dad, he’s had time to relax and respond to his treatment. We are very aware that the environment really feels like home and everyone is always ready to offer help and greet us with a kind smile.
“The staff and volunteers have been wonderful and spent time with my daughter Lucy, which has allowed me to have some precious time with my dad.”
It’s great to be making and sharing some wonderful memories right now.
Steve
Steve is looking forward to going home to enjoy the Deal seafront and also a special visit from his family who are arriving from Australia, especially as he will meet a new grandchild for the first time. Proud granddad Steve is also looking forward to sharing ice lollies and other seaside treats with them this summer.
“Although I know I will not be there to see all of the grandchildren grow up, it’s great to be making and sharing some wonderful memories right now,” Steve added.
Each year Pilgrims supports hundreds of local people coping with a life-limiting illness and their families. The charity offers a range of services: from end of life care given on its wards to its Wellbeing and Social Programme supporting people after they are diagnosed to live well and stay independent.
7th February 2018
“Have that conversation, help is at hand for your family”
Pilgrims care extends beyond the person who is ill to include their family and friends. Families coping with a terminal illness can be empowered to have the conversations they need to make the most of the time they have. Here Holly Cooke from Ashford shares her story.
I was 21 when Dad was diagnosed with cancer. He was mad keen on golf and always at the club helping with charity events. Everyone he knew was stunned when he got ill because he was such a fit and healthy man. When it’s your Dad you don’t know what to do.
Support to stay independent
We formed a close connection with Pauline his doctor, it was a collaborative approach and it made such a difference being listened to. It’s really important to be able to manage your own illness. Dad was fiercely independent and to have that support until the last minute meant he could make his own choices about his care. He was an incredible man.
He came for courses of pain management support for over a year and had specialist massages from the Pilgrims complimentary therapist.
While Dad was seeing the specialists, Mum was given the option to use the support groups, although she didn’t attend due to the support and advice given by the doctors and nurses at the hospice. It was a relief to know she was getting what she needed to give her the strength to care for him. We could do things as a family in that time we had together.
“We could do things as a family in that time we had together.”
I would not change the way Dad went in the end. He had been give a prognosis of anywhere from a few months to 18 – in the end he lived for 16 which was brilliant. It was definitely down to the care he received at Pilgrims that we could do things as a family in that time we had together.
We felt safe at the hospice
On the Friday before he died Dad went for a three mile walk, he was still feeling fit and active. I remember him sitting out in the garden in the sun reading the newspaper.
Then on the Saturday, the day before he died, he couldn’t get out of bed but we were watching films together. He was really with us, laughing and joking.
In the end he wasn’t on the hospice ward long. I was at work when I got the call that he had been taken in and within an hour and a half he had died.
We were in shock but the ward sister was brilliant. She gave us a private room. It was all very calm and we felt like we were in safe hands.
The care for our family didn’t end when Dad died, we were offered support and Mum was supported by a hospice counsellor.
If I could speak to other people in my situation or Dad’s who don’t think the hospice can help or who’s scared of going – I would say just go and speak to them, have that conversation.
So many people are scared because they think it’s going to be a sad place. What they don’t see is that when you get there you will see beautiful gardens to walk in, there’s a lovely chapel and people smile at you. No one is sad because they are in the right place.
If you or someone you know is living with a life-limiting illness there is a wide range of support and services available. Talk to your GP or click here to find out more.
